The Final Journey, Part 14 (The Dream)

Wednesday March 15

She’s there! I exclaimed to myself as my eyes popped wide open. It was my first thought after awakening from a deep sleep. I was lying on my back feeling elated and the most rested I had in a long time. I didn’t want to wake up. I wanted to go back to my dream. She must be settled in by now, I thought, or maybe I hadn’t been ready to receive her until now.

Some say that those who have passed on visit us in our dreams. Being a practical guy and not falling easily for esoteric, new age ideas, I would never have believed it myself, but it happened to me once before. When Gram’s son, Chubbs, died, he too, came to me in a dream months later. My therapist says we dream every night, we just don’t remember most of them. I’m not sure about that, but I do know that I only remember a few dreams per year. And this one was significant.

On the surface, the dream was weird – the scenes were choppy and incomplete - as I suppose most are. But as I recapped it in my head and with my best friend, Natalie, the next day, I believe it was deeply symbolic and meaningful.

It was nighttime and Gram and I were sitting at Del Frate’s bar in downtown Pittsburgh, a place where I spent a lot of time in the late 1980’s. It was dimly lit and we were amid the constant din of voices, some conversing with us. I couldn’t see faces, only torsos, and I don’t know who these people were. Gram didn’t drink and certainly didn’t frequent bars, so I’m not sure why we were there. Gram broke through the noise, “I have to go. I’m getting the bus home.”  

“No, I’ll drive you.” I was always afraid for her walking around or riding the bus at night in the city, which she did for many years while working at Carlisle’s. Within seconds, I was in the passenger seat of my car, which was in a parking lot across the street, looking at Gram sitting in the driver’s seat. I wondered why she was there. She never learned to drive. “I’ll drive.” I said.

Suddenly we were in a large field with lots of people. The field was situated on a large, grassy hillside. It was a cloudy day, which made it easy to see the circular grove of trees at the very top without having to squint. The hay-like grass was long with blades of brown intertwined – typical of late summer. A path had formed where the grass was worn down from the foot traffic. To the right was a long, galvanized, chain link fence that separated those of us walking up the hill from a soccer field and an adjacent baseball diamond. I couldn’t tell if anyone was playing there, though. The landscape was vivid, but there were no faces on the people and there were no sounds coming from them.

There were people of all ages, too, on this hill. They were walking about purposefully and in unison – in the same counterclockwise direction and never stopping. It was not a hustle and bustle, they were moving more slowly than that. Yet they were not zombies.

Gram and I were walking up the hill along with the others. Gram was walking a few feet behind me and to my right.

We turned with the crowd, toward a plateaued area on our left and continued to walk. This area was grassy, too, but it was much greener, shorter, lawn-type grass. There were white track and field markings chalked onto it. Children were running around and playing here. I could not hear them and they were not in unison with the adults.

I looked over my right shoulder to check on Gram and my heart dropped suddenly when I realized I had lost her. In her place, now, was a white-haired woman. There was no face on this woman, only white hair. She walked with me as I re-traced my steps in an attempt to find Gram. My body began to tremble and I felt that familiar, uneasy feeling in the pit of my stomach. “Have you seen Gram?” I asked people as we walked. But no one responded to me. They kept walking.

As we walked over the plateaued area and back down the hill and began the ascent back up to where we started, I was puzzled as it became clear to me that we were all simply repeating the same large circle - up the hill, left to the plateau area, then back down. No one ever made it to the peak where the trees were. I didn’t have time to figure it out.

As the white-haired woman and I made it back around along the fence, I, once again, turned to my right side and noticed I had now lost her, too. I was suddenly alone and confused. I stopped dead and turned completely around and there, about 20 feet down the hill behind me, was Gram. She was with the white-haired woman and giving her hell about something. I could not hear words, but I could see Gram waving her finger at the woman.

It was only then that I finally saw Gram’s face and image clearly. I noticed in that moment how beautiful she was. She was the young, vibrant, and healthy Gram of earlier years. Her hair was dark and neatly curled. (It was still dark when she died, too, but had recently become streaked with gray.) She was wearing lipstick and had powdered her nose and cheeks like she used to. She had on a two-tone blouse, whose turquois and blue colors were soothing. It reminded me of some sci-fi women’s styles from the 1980’s. It had stiff, pointed shoulders that protruded over her arms. Perhaps something you’d see on Joan Collins back then, but Joan’s would be power red. The blouse went to the waist and covered the top of her dark wool slacks. Upon seeing her, I immediately stopped trembling and my stomach settled.

I woke up.

As I lay in bed contemplating my dream, I wondered if I had visited heaven. Is that what the field was? Were the people there those who had passed before? Or, rather, was the field symbolic of life here - more specifically - the circle of life, represented by the young, the old, and the repeating of the circular movement through the field. I suspect it was the latter.  

Furthermore, I don’t think I lost Gram when I turned around. I think she broke away from me or perhaps, more appropriately, released me. I believe she was conveying a message that it was ok for me let go of her and get on with my life – that she was fine and didn’t need me to worry about her anymore. And those 1980’s references – the bar, Gram’s outfit? I believe they harkened back to a time when things were better, when Alzheimer’s wasn’t even a consideration and when Gram was vibrant, active, and healthy.  And I believe they aided in reinforcing the message that she was whole again and I could move on to seek my new purpose.

The white-haired woman was Jude, Gram’s daughter-in-law. I’m sure of it. Gram was giving Jude hell as she often did throughout the many years of their love-hate relationship (mostly love). Gram would definitely want me to be there for Jude, but perhaps she was telling her to take care of herself so that she would stay healthy and stay around for a while. Jude and I also share a bond and losing her will be difficult. Gram knew that. Or perhaps she was simply giving Jude hell because it’s what she always did.

As I got out of bed to start my day, I thanked Gram for the visit and the message. She may never visit me again, as Chubbs never came again after that first visit. But I take solace in knowing that she is ok and our bond has been re-established. 

The Final Journey, Part 13 (Provincetown)

Wednesday October 19

The drive up route 28 north was different this time. Nothing had changed on the route; it was still 35 miles on the highway before switching over to the mostly two-lane, twisting and mountainous, country road. The drive was dark and especially quiet at 5:30 a.m., interrupted only by the occasional lights and passing of an 18-wheeler. It would be 90 minutes before I reached I-80, the interstate that would take me across Pennsylvania.

There was an eeriness to the drive this time, though – not only was it dark and quiet, but a thick layer of fog neatly hovered between the road and the sky, as if suspended on cables. That fog would stay with me until daylight. I noted how it metaphorically resembled my own recent state of mind. This first part of the drive was always the most peaceful part of the trip. I could relax and let my mind drift. The few vehicles on the road at this time of the morning meant that I only had to keep my eyes peeled for deer, especially once I hit the two-lane portion of the road. It was normally a long, lonely drive to I-80, but this time it few by. The radio was blaring with the KDKA morning show, but I didn’t even hear it. I was deep in thought and not in my usual frame of mind.

My October Provincetown trip was historically about Alcoholics Anonymous. It had been more than ten years since I first attended the Provincetown AA Roundup. I loved it immediately and I haven’t missed a year since that first one. Close to a thousand gay and gay-friendly alcoholics would descend upon the tip of the Cape and we would enjoy a long weekend of friendship, fellowship, sobriety, and fun. In stark contrast to my annual summertime visit, October in Provincetown is a perfect time for sobriety, recovery, and peaceful reflection.

As always, there would be friends, too, those who were residents and who I often didn’t even see during my summertime visit as they were either hiding away from the crowds or too busy working seasonal jobs, or both. There would be those acquaintances from all over the country that I would see from year to year.

And so these were the things I usually contemplated on the drive  - who I might meet or what AA events or workshops I would attend; what new restaurants may have opened since summer or which would still be open this time of year; or which restaurants I wanted to try but couldn’t during the summer because they were too busy.  Where would I eat? I’d wonder. How would I spend my free time? How much time would I spend with my friends? These were all the normal things.

                This time, however, I wasn’t thinking about the normal things such as AA events or restaurants and food or friends. I was consumed with deep thoughts about my now life. I was wondering what this trip would be about. What did I hope to accomplish? It had been only nine days since I lost Gram. I was experiencing a major life change and I was lost. My therapist had suggested I was not only mourning Gram, but also my job as her primary caregiver during her disease, and my purpose, which had, for all of my adult life, been to take care of her in one way or another. Therefore, I was seeking purpose, direction, and faith. Four days in Provincetown wouldn’t be enough to find it, I knew, but I wanted time to reflect and I wanted to write in hopes of attaining some guidance.

As I drove, I reflected on the days since Gram passed.  I remembered how I thought this trip may not happen. When Gram stopped eating, I didn’t know how long she would live. I honestly thought it might be a month or so. And perhaps had she just stopping eating, it may have been a month. But when she stopped drinking, things moved quickly. The body can survive a while without food, but without water, only days. I realized, too, she had been slowly starving for the couple of months that I had been struggling to get her to eat. Of course, I would have canceled my trip in a second to be with Gram had she not died.

At home, I had put off doing Gram’s last loads of laundry. Some of it I had at my house before she died and there was that which I brought when Michelle and I cleaned out her room that morning she died. Doing her final laundry was difficult, but I wanted to get it done before Provincetown and donate it to ManorCare as I had done with the rest. I had procrastinated doing it and now scrambled to do so the night before I left.

As I reached in to gather the last load of clothes from the washer to place it in the dryer, I saw something in the bottom of the drum. It was a rusty nail. I immediately broke out in laughter. Over the years, I had found some bizarre things in the washer that Gram had picked up and stuck in her pockets – plastic gloves, cups, and money, for example. But the nail was a first. I picked it up, clasped it in my hand as I shook my head and laughed. For a few minutes in my laundry room, I got comfort from a dirty old nail. I decided immediately I would keep that nail forever. It’s a perfect reminder of the character Gram was in her disease – mischievous and curious, and in many ways, childlike. It was a sad fact, but at same time sweet and funny. 

Before finishing up the laundry, I pulled out one of Gram’s favorite sweaters and a pair of PJs to keep for myself. I placed them safely in a plastic bag. They would provide me with comfort any time I needed to remember her smell.

When I arrived at ManorCare to deliver the clothing, I wasn’t ready to go downstairs to where Gram’s room was. Luckily, the woman at the front desk was there and told me I could just leave the bags in the conference room upstairs. She held the door for me, expressed her condolences, and thanked me for the donation.

I was exhausted and fell quickly into a deep sleep that night when I got home from ManorCare. However, I woke up middle of the night, terrified and confused. I sat up in bed. I rubbed my eyes and my head trying to determine if I was awake. I momentarily lost track of reality and I wasn’t sure if Gram was dead or alive. I struggled to get to reality. It took me several minutes to talk myself down and to realize that she was, indeed, dead.

By the time I had arrived at the ShireMax Inn, 11 hours after I had set out, I had come to a couple conclusions about the trip.

First, this was not going to be a social trip for me. I just wasn’t feeling that way. Depending on circumstances in any given year, my participation level for the AA events varied. I decided I would not participate much this year. I yearned for alone time – for my thoughts, for my writing. I was so desperately afraid that if I focused on anything else, I’d forget Gram.

There would be two exceptions to my anti-social rule. They were my two dearest friends in Provincetown. I would be happy to see my friend Bruce and I would spend some time with him. He and I had been friends for many years. We met when he lived in Pittsburgh. He moved to Provincetown twelve or so years ago. He was responsible for turning me on to this beautiful place. My first vacation here was with him in 2002. I’ve come every year since.

I would also see my friend Dennis. Dennis has run the ShireMax since the first year I stayed there. His hospitality and upbeat, funny, and colorful personality, have kept me coming back. The Inn is the only place I’ve stayed since I was introduced that first time, probably six years ago. Dennis and I became immediate friends then. “Michael, if we had met when we were young, we would have been best friends,” he said to me once. I agreed. I cherish his friendship and I always look forward to seeing him and catching up.

Dennis greeted me with a big hug and expressed his condolences for Gram. His sentiments were authentic and felt nice. He knew my relationship with Gram. He didn’t have to say much; I knew he understood.  We caught up for a few minutes.  But I was restless. I wanted to shower and attempt a nap.

Both of these guys knew me, understood my life, and respected my current challenges. There was no pressure with either. They respected whatever I needed to do.  Furthermore, since I had been going to Provincetown 14 years, I was comfortable and knew my way around. I felt at home. This was the perfect place for me to be now.

My second conclusion was about the book I had been working on that would tell the story of my relationship with Gram and the journey through Alzheimer’s disease. The book suddenly seemed less urgent, even meaningless now. Was it still worthwhile? I wondered. I knew deep down that it was worthwhile, but not immediately urgent. For now, I was compelled to write a different story – to chronicle these last several weeks – those that led up to Gram’s death and those after. I needed to document this “Final Journey” both as a healing exercise and so I wouldn’t forget. It would become my focus on this trip and for some time ahead. I would take a temporary hiatus from the book. Provincetown was the perfect place to reflect and write this story.

My first night sleeping in Provincetown was as equally disturbing as the night before at home. Again, I went to bed early, fell into a deep sleep quickly. I slept over eight hours. However, when I awoke, my body felt fully rested, but my mind was exhausted. It was odd, but I knew there was a lot that went on in my head during the night. I just didn’t remember any of it. I felt turmoil; I felt anger – not toward Gram, but about Gram, I think. I spent that entire day feeling emotionally exhausted. My brain definitely had a lot to work out.

In the end, I had a good trip. It was quiet and low-key. Although I had questioned whether it was a good idea to go in the first place, I learned that it was. I slept a lot. I needed it. I spent a lot of time writing and I spent some much-needed time alone. It was exactly what I needed. It was a good place for me to be at a time in my life that was not so good.

The Final Journey, Part 12 (WTEA)

Saturday October 15

In the days following Gram’s death, I was consumed by sadness and engrossed in a deep fog that followed me everywhere I went and rendered me lost and directionless. I was going through the motions of life, but I was not present for it. This fog often left me unaware of my surroundings and it kept me distant - deep in my thoughts and memories. I was lucky, though. I had wonderful memories of Gram, many of which were funny and would have me smiling, and at times, laughing out loud – even at the most inappropriate times. I will always remember what a character she was. Was I grieving her? Absolutely, but I enjoyed remembering her antics and those many good and funny times. I had lost her, but I would always have my memories.

But as the grieving process goes, there were those "first time since” or “last time I did this, she was here” thoughts that accompanied everything that I did those first few weeks. Common when someone dies, I believe these thoughts are normal and integral to the healing process. They diminished as I continued walking through my “now” life. They would continue through the first year without her, though, especially during holidays, birthdays, and special events.  I knew this from experience.

As much as I couldn’t imagine my life without Gram, day by day I was beginning to see it. Life, indeed, did go on, whether I liked it or not. I was alive and I had things to do. Some of these things – those more immediate - would be different now, perhaps more significant and definitely more reflective.

On the Saturday following Gram’s death, I participated in the Walk to End Alzheimer’s. I didn’t want to go this time, only five days after losing her, but I was compelled. This year, more than ever, I needed to honor my commitment – the commitment to walk each year since Gram was diagnosed with this nasty disease. I had participated in the Walk from the early days when it was held at the Pittsburgh Zoo. A few years ago, it was moved to North Shore near Heinz Field, which was a much better venue, since it had grown so much.

Around that time, I believe, they initiated the Promise Garden, too. This has become my favorite part of the whole event. Each participant is given a large flower that represents their reason for walking. The flowers are made of large fan-like nylon petals attached to a spinner so that the breeze catches and spins them. The stem is plastic and long with two nylon leaves attached. Markers are provided for those who choose to write something on their flowers. The long stem allows for “planting” in the Promise Garden – an exercise that each walker is asked to do as they approach the starting line. At the end of the walk, each person can retrieve their flower to take with them. Some, though, like me, choose to carry their flowers through the walk, unwilling to let go of them. The Promise Garden, with all of the purple, blue, yellow, and orange flowers spinning in the breeze, is a majestic sight to behold. It especially was on this day. 

For me, picking my flower this time was obviously different and doubly heartbreaking. Traditionally, I picked up a yellow, “caregiver” flower and wrote In Honor of Gram on it. But this time, I picked up a purple, “for those who have lost someone,” flower. As the tears rolled down my face and dripped on to the plastic table cloth below, I struggled to write, In Memory of Gram. 

She was alive the last time I did this, I thought as I looked out across the large crowd that had gathered and was working its way toward the huge purple balloon arch at the starting line. It was a stunning morning. The sun was shining brightly in the crystal clear, bright blue sky. It was beautiful and warm - about sixty degrees to start - a perfect day to remember Gram. Thanks, Mum, I mumbled as I approached the starting line, as if she granted this day to me specifically.

Over the years, the Walk has been a way for me to feel purposeful about the disease – in hopes of eradicating it; supporting others in my own way; and, of course, to honor Gram. This year, it was particularly so.

Furthermore, participation has been a solitary and solemn event for me. I didn’t socialize much and I walked alone. I was there to remember - to remember Gram, reflect on her life and mine, and to be grateful for her. This year, I avoided talking to anyone and when I saw people I knew, I ducked away or pretended I didn’t see them.  I wanted to be alone with my memories.

As I walked through the North Shore, carrying my purple flower, my life with Gram, again, flashed through my mind, just as it did a few weeks ago, prior to her death. All the things that took place over many years – that seemed to be frozen in time for the last eight – now all hit me as the stark reality of walking in memory of sank in. This made things real and at the same time, still so incomprehensible. I suddenly saw that old life fall away in pieces right in front of me and disappear – slowly at first and piece by piece – but then suddenly it all came down like an old building being imploded and crashing inward and downward toward the ground. Everything was gone – Gram’s house; the dinners; the holidays; the Sunday evenings when it was just me, her, and Jude; the yard, the work – all of it. Gone. It crashed down - unfrozen and real. Of course, it had been gone for years, but it was as if it was just waiting for Gram’s death for this huge dose of reality.  None of it happened suddenly, but it felt very sudden that day.

As I continued to walk, my mind also flashed through the escapades of the years since this disease, reminding me that it wasn’t all doom and gloom. Scene after scene passed and I would laugh as they exemplified the foul, funny, outspoken character Gram was. Even the last coherent words she said to me demonstrated it: “I have to get the hell out of here.” I’d smile knowing all the people she had touched. I loved sharing her with others. Her antics were unmatched.

From this day forth, I would be walking in memory of Gram. Indeed the life was gone, but I had my memories. I would cherish them forever.